Autism:
It’s not like you think.
This is
one of my favorite autism slogans, because it’s a clever play on words.
On one
level, it’s simply saying that those of us outside the autism world probably
don’t have a clear picture of what autism really is, or what it’s like to live
with. On another level, the slogan specifically identifies one of the central traits
of autism: An autistic person’s brain is wired differently than the rest of the
world’s. Their thought processes follow different patterns and pathways than
the rest of us.
My
oldest son has Asperger’s
Syndrome, a high-functioning form of autism. This was one of the main
factors that influenced me to choose Mark Haddon’s award-winning 2003 novel The
Curious Incident of the Dog in the Night-Time as my November book club selection: I
wanted to see if it would help me understand my son better.**
I must
say, the similarities between by son and Curious
Incident’s protagonist, 15-year-old Christopher Boone, were eerie. The
constant anxiety in navigating the social and physical world. The aversions to certain
foods, smells, colors, and to physical touch. The intense preoccupation with
narrow subjects. The lack of appropriate emotional reciprocity. The impaired
ability to process facial expressions of others. The need to stick to
inflexible routines and other forms of rigidity. The
difficulties with theory
of mind (like the pencil hidden inside the roll of candy). The ritualistic
movements or utterances, known as stereotypies. The inability
to process certain forms of humor or metaphor.
So on
one hand, the book comforted and affirmed me as a caretaker of someone with
autism. I often feel this way when I see a realistic and sympathetic portrayal of
Aspies (and those who love them) in the media, such as in the movies Adam or Temple Grandin, or in the
TV show Parenthood. (However, don’t even
get me started on Glee.)
But on
the other hand, Curious Incident was
way too dark for me. On the dust-jacket, several famous authors blurbed about
how funny the book is. However I failed to see the humor in it. And I suppose
the ending of the book was intended to express hope about Christopher’s future,
but I didn’t feel hopeful. Perhaps I’m just too close to the situation?
Have
any of you read Curious Incident? I would be really curious (I know, interesting word choice) to know
what someone outside the autism community thought of it. I don’t know if I
would have been able to finish it if I wasn’t so committed to my son. I felt
reading the book was kind of like watching a train wreck: almost impossible to
turn away, but brutal to observe. Was it revealing or interesting to you, or
just too weird? How did you respond emotionally to it? Did you find the ending
hopeful?
I’ll
leave you with this fun fact:
According
to Wikipedia, the book’s title “is a quotation of a remark made by the
fictional detective Sherlock Holmes in Arthur Conan Doyle's 1892 short story "Silver
Blaze". Those of you who read the book will understand the
significance of this.
Please join me
for December’s IQ Book
Club selection, Gilead,
by Marilynne Robinson!
**The autism world quickly embraced Curious Incident when it was first published. However Haddon never explicitly states
that Christopher actually has Asperger’s; it was just assumed by those familiar
with it. Haddon himself became increasingly uncomfortable with the role many
desired him to fulfill: that of a voice or advocate for those with autism. He
has subsequently stated he is not an expert on autism, and refuses for the most
part to speak to the topic.

Stephanie, thanks for the post. We to have a daughter with an autism spectrum disorder. Not always easy, but God has been so faithful. Thanks. Steve
ReplyDeleteStephanie, I read "Curious" in seminary. I had a choice between it and, interestingly, "Gilead". I got a degree in Biblical Counseling, and we read it for insight into what it might be like to have autism/ ausberger's. From what I understand, Haddon worked with kids with autism and augsberger's, thus the eerie"ness" of the similarities. It was one of my favorite books I read in seminary. Maybe because it was not academic in nature, but a realistic depiction of what life is like to be autistic or live with an autistic child. There's nothing funny about it. Thank you for your summary and confirmation about the reality of the book.
ReplyDeleteDavid Jones
Thanks, Steve and David, for both of your comments.
ReplyDeleteI did read this book, but my memory is useless - I don't even remember the ending enough to comment (how sad is that?). But I can suggest another that I just read: Anything But Typical by Nora Raleigh Baskin. I can't speak to its accuracy, but if it's even a little bit accurate, I appreciate the insight I gained by reading it. Are you familiar with it, Steph?
ReplyDeleteTracy, No worries on "Curious Incident"...when you read as much as you do, most books start to run together! :) I've heard "ABT" mentioned in autism circles (very positively)...with your recommendation it goes on my official "to read" list! :)
ReplyDelete